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www.cdadc.com : An affirmative action site loaded with Down Syndrome Information.As a positive action information web site on Down Syndrome, the information provided here reflects the ethos of inclusion, non-discrimination and social justice for those with Down Syndrome. Information is knowledge, knowledge is power. By providing Down Syndrome information, it is hoped that parents and others charged with the care of those with Down Syndrome, will also become more empowered to make more informed decisions. People with Down Syndrome have the same rights as anyone else to live a safe, integrated and normal life in the society in which they live. This ethos should certainly exist and be firmly encouraged within childcare centres, kindergartens and schools, as they form the back bone of learning social interaction skills - what is tolerable, acceptable and worthwhile. Should the education system fall down at any part, it is the child with Down Syndrome that will be most hurt by their attitudes.
History of www.cdadc.com as a Down Syndrome information web site:In the beginning, www.cdadc.com started out as a business web site, with the Down Syndrome information part put up because I wanted to communicate what I was learning about Down Syndrome to other parents, especially new parents concerned about their child being born with Down Syndrome. Cdadc also served the purpose of being a crisis site, with many parents coming and seeking information on Down Syndrome shortly before or after their child with Down Syndrome was born. As the number of people visiting the web site for it's Downs Syndrome information became more and more, the business side was withdrawn, so that www.cdadc.com could become focused purely on the Down Syndrome information that so many people, particularly parents, were hungry for. Particularly the information on Down Syndrome treatments and interventions.
The information on www.cdadc.com is always changing as new information on Down Syndrome becomes available.We keep updating the information as newer insights and findings on Down Syndrome become available. At times pages have had to be rewritten, as the newer information over turned previous thinking or research. That's one of the reasons why I say, nothing is yet written in concrete or stone. Science keeps adding new knowledge and keeps comeing up with new ways of dealing with old problems. The information is priceless - one moment it may be worth it's weight in gold, the next it may be a screwed up piece of paper. However, our understanding that that information gives us on Down Syndrome, adds to our ability to make better informed decisions for our children with Down Syndrome. You only have to see the ever increasing life span to realise how pertinent new information is, especially when you push to have it applied to those with disabilities. When resources are scarce, professionals will often try and find a way to decide who will get the benefit - eg heart transplant - and who wont, often people with DS can find themselves on the no resources for you list, including in the schools. It is only by standing up and fighting, based on the informatin one has, that such discrimination has a chance to be ended and done away with.
Keeping the Down Syndrome information unbiased.Keeping all this information on Down Syndrome isn't always easy. Some people with vested interests in selling products to those who have children with Down Syndrome, have sometimes become quite abusive when I refuse to bias the web site to give misleading information. I recall receiving one request from a Down Syndrome support web site, telling me I should not include the information on the disadvantages of some Down Syndrome treatments, as by giving parents the information, may stop some from using some commercial vitamin treatments. At one point I even got inundated with abusive emails from several sales reps from one business in 2006, for providing truthful information about their product's non-benefit to those with Down Syndrome. One big round of abuse, August 2007, came from a large USA company - the same company that had the reps above on their payroll - who kept sending cease and desist orders against one of our Down Syndrome information pages and whose legal department would refuse to acknowledge nor answer any of my emails concerning their threats. They were objecting to one of our Down Syndrome information page, which clearly showed their product appeared to have very limited benefit - if any - to those with Down Syndrome. Even phone calls to their branch office in Sydney, Australia, proved fruitless, with them stating they would not try and sort anything out - it was just too bad if the parent company was acting that way and shut us down. So, because of that type of abuse, this web site was then moved to a non-US server, which would require them to take out a court order to try shuttting www.cdadc.com down - which means they would have to prove what they were saying in the public arena and we would have to be notified etc. It went like this: They claimed I was selling their products on this Down Syndrome information web site - I don't - therefore I came under their company's rule and regulations - which I don't - under their company's rules and regulations they stated they had a legal right to force a cease and desist order for someone making claims about their products who worked for them in any way - I don't work for them and never have. I am told that many people would have buckled under and just complied. We didn't. We don't accept that that type of bullying has any place in this world. People with Down Syndrome and their carers and parents have the right to informed information on Down Syndrome treatments - should not be preyed upon nor abused by people and companies like that one, by having Down Syndrome information suppressed. You will be happy to hear though that the incident had a happy ending. The company apologized and stated they were trying to crack down on sales reps that were misleading consumers into buying their products under false pretenses. Cdadc.com has since returned to an American server. :) I still continue to try and provide unbiased and accurate information on Down Syndrome, in spite of such, so that parent's and others can be better informed and know what other information on Down Syndrome may be out there. When we first started providing the Down Syndrome information, it was because our fifth born, Jacob, was born with Down Syndrome. In order to try and help our son, we actively sort out information on Down Syndrome, that we thought may benefit him. That's one of the reasons too, why we refuse to bias the Down Syndrome information we provide. We believe that you are going to be like us and want the truth about how to better develop our children in every way - intellectually, physically, socially ... This starts with unbiased information, so that we don't waste our time and money on products or services that have limited or no benefit; some may actually be harmful. Still, you will likely need to search out other sites with Down Syndrome information, to gain an even bigger perspective - some parents may have tried treatments or products that we haven't - their information on Down Syndrome may be just as valuable.
When checking out a web site for information on Down Syndrome, try and remain alert to possible biases in the information presented to you.You can often pick such web sites with biased information, as they will tend to play down or not mention problems or limitations with the treatment, try and sell you products that treat Down Syndrome in some way, or boast no end about how this product or treatment worked incredibly well with their child with Down Syndrome and should be used with all. Another thing to watch for that suggests biased information on Down Syndrome, is when the web site presents lots of non focused research and information, claiming it supports the treatments use on those with Down Syndrome, when in actual fact the information doesn't support the conclusions they are drawing - more than likely you are being snow balled / conned. These are some of the indicators that the information being provided to you on Down Syndrome may be biased.
Also, when searching other sites for Down Syndrome information, be aware of the different names of Down SyndromeMasses of people used masses of time, effort and money to change the name from Downs Syndrome to Down Syndrome. I also found myself using the term trisonomy 21 right up until early 2008. So, when you are looking at Down Syndrome, the other names that mean the same include Downs Syndrome, Down's Syndrome, Trisomy 21 and Trisonomy 21.
DOWN SYNDROMEOur Down Syndrome information we provide is FREE, COMPREHENSIVE and WRITTEN FROM A PARENT'S / PSYCHOLOGIST'S PERSPECTIVE. A full descriptive index to our pages on Down Syndrome are provided below. Here Jacob is playing Zoombinis. Although Jacob is a 6 year old kid with Down Syndrome, he is able to play this computer thinking game for 8 year olds. Kids with Down Syndrome often take to computers with a passion. Note that with Down Syndrome the hand is a bit smaller, so a small mouse is invaluable. OUR DOWN SYNDROME GOALS INCLUDE, FOR EXAMPLE: INCREASING INTELLIGENCE and LESSENING MENTAL RETARDATION of those with DOWN SYNDROME; IMPROVING THE HEALTH of those with DOWN SYNDROME and; IMPROVING ABILITIES OF THOSE WITH DOWN SYNDROME This is actually the basis of this website, TREATING and MAKING the best of DOWN SYNDROME. We too, want to help our son, Jacob, with Down Syndrome, as much as we can. Let this be clear: Without treatment, any kid with Down Syndrome nearly always has mental retardation, ill health, poor abilities and a very short life span. However, we can alleviate many Down Syndrome symptoms through good treatment and intervention. So, look through our Down Syndrome page descriptions below and click on the underlined ones which interest you.
In case you are new to the internet, sometimes having a kid with Down Syndrome spurs you on into the unknown internet to try finding answers, for you I would point out that writing which is underlined, normally are clickable links that will take you to our webpages that provides information on that topic!!! Nearly everything that is underlined can be clicked on. Our Down Syndrome pages cover many Down Syndrome treatments which may save you much money, as we review many of the treatments and explain how they did or did not benefit our son. There are also, regrettably, some popular Down Syndrome treatments that appear to be nothing more than ways to steal your kid's inheritance. Some almost go far as to promise you a cure for your kid with Down Syndrome, but at a price - often for as much as several hundred dollars a month, sometimes thousands a month, over several months or years. Be careful of those promising you everything, for a price, as it is very easy to fall prey when you are desperately trying to help your kid with Down Syndrome. We know, because we've fallen into their traps as well - we tried some of them with our son and, through newsgroups and many other parent's experiences, we came to realise how common it is for parents of kids with Down Syndrome to be taken advantage of by people pretending to be caring, but who just want YOUR money. There are also some Down Syndrome treatments that can really help, we discuss these as well. Many of Jacob's Down Syndrome web pages were started six years ago. Over this time we have added more and more information and pages on Down Syndrome, covering many more Down Syndrome topics as well. We talk about Down Syndrome pregnancy symptoms and tests, Down Syndrome and Day Care, Down Syndrome and school, toileting, walking, speech ... just masses of Down Syndrome information for you to read at your leisure, on just about everything to do with Down Syndrome. Now, this page explains the policy we adopt with the DOWN SYNDROME INFORMATION that we research and place here on www.cdadc.com We trust you will gain much on Down Syndrome and go away feeling it was time well spent - we have certainly put a lot of time and effort into our Down Syndrome pages over the last few years. WHAT IS DOWN SYNDROME, CAUSE OF DOWN SYNDROME, DOWN SYNDROME TREATMENTS, DOWN SYNDROME SYMPTOMS, etc etc. We cover heaps and heaps of information on Down Syndrome.
OUR DOWN SYNDROME PAGES WITH DETAILED DESCRIPTIONS ARRANGED BY TOPIC:  TREATMENTS FOR DOWN SYNDROME:INTRODUCTION TO THE MANY DOWN SYNDROME TREATMENTS
DOWN SYNDROME INTELLIGENCE, MENTAL RETARDATION, COGNITIVE DISABILITY, DEVELOPMENTAL DISABILITY
DOWN SYNDROME and GLYCONUTRIENTS eg AMBROTOSE MADE BY MANNATECH
DOWN SYNDROME and VITAMINS - THE CLAIMS
&VITAMINS and DOWN SYNDROME - A REVIEW BY DR. COLEMAN
DOWN SYNDROME PREGNANCY:DOWN SYNDROME PREGNANCY SYMPTOMS
Information ON Down Syndrome Risk in PREGNANCY: Risk of Having a Baby with Down Syndrome - facts and figures based on mother's age, father's age. Fertility issues of parents to consider. Fertility issues of adult kids with Down Syndrome to consider, as well as their offspring.
Translocation Trisomy 21 - Are you a carrier of Down Syndrome? Down Syndrome abortion is different to a normal abortion in one big respect, the baby is normally wanted. DOWN SYNDROME HEALTH:WHAT TO EXPECT WHEN YOUR BABY HAS DOWN SYNDROME Down Syndrome babies have special needs, by knowing these needs, you can help them along.
DOWN SYNDROME AND VITAL HEALTH INFORMATION Information on Down Syndrome and Improving The HEALTH and life span of those with it. Down Syndrome Health Problems to Check for. Down Syndrome Symptoms to watch for. So many health facts. 1...So Many Appointments and Investigations so Soon; and Don't Forget all Those Vacinations. 2...Many of the things that often go physically wrong with a person with Down Syndrome. 3...A danger of the Antioxidant Approach. DOWN SYNDROME AND SINUS AND MIDDLE EAR INFECTION Information on Surgical operations and Down Syndrome. They tend not to be so successful and additional operations may be required when the patient has Down Syndrome. Also home remedies and what to do and what to avoid! DOWN SYNDROME HYPOTONIA AND LOW MUSCLE TONE Information on Down Syndrome, Disability and Low Muscle Tone - 1...Hard to Understand. 2...Defined in Relation to Muscle Stamina. 3...Devastating Effect of Low Muscle Tone, and 4...What it Means to the Sufferer. Information on Down Syndrome, Dementia and Alzheimer's Disease and what you can do about them. Although dementia is a disability and this page may be of interest to you for that reason alone, what you may not know, is that those with Down Syndrome are said to be at greater risk. Also, Alzheimer's disease and dementia may begin when the person is a kid, but it may also be preventable. We provide two other web pages on dementia as well - non Down syndrome - on Alzheimers disease and one on vascular dementia, which may be of interest to a Down Syndrome carer. Information on THANK YOU to - perhaps these people and professionals can help you to with your son or daughter with Down Syndrome and or disability. AFFIRMATIVE ACTION FOR DOWN SYNDROME:DOWN SYNDROME MOVIES AND AFFIRMATIVE ACTION Information on abortion. So the Doctor wants You to Consider the ABORTION of your baby, because your baby may have a disability called Down Syndrome: Here are some short MOVIES of Jacob who has Down Syndrome. These video clips were taken around the home, back yard and some were taken on our holiday. Information on Down Syndrome as it relates to school. To school, special school, or home school? WHAT THE FUTURE HOLDS FOR PEOPLE WITH DOWN SYNDROME The future for Down Syndrome kids appears to be improving all the time. We can expect our Down Syndrome kids to enter the work force, hold down a job, live reasonably independently and lots more good stuff ahead. DISCRIMINATION, DOWN SYNDROME AND THEIR HEALTH AND FITNESS Yes, unfortunately, people with Down Syndrome are discriminated against in the health and fitness industry. DOWN SYNDROME AND CHILD ABUSE OF THE MENTALLY RETARDED Information on abuse - the intellectually disabled are an easy target for child abusers. Kids with Down Syndrome are at risk. DOWN SYNDROME AND SEX EDUCATION - PREVENTING THE SEXUAL ABUSE Information on Sex Education and the Intellectually Disabled; so suitable for an adult, teenager or kid with Down Syndrome. 1... People have the right to reproduce, have kids and raise a family, including those with Down Syndrome. 2... Nearly all Females with Down Syndrome are Sexually Abused. 3...Start Sex Education Early to Help Prevent the child abuse of your son or daughter with Down Syndrome. TRAINING OUR DOWN SYNDROME KIDS:Information on Teaching Training WALKING to those with Down Syndrome: The Treadmill Approach for Down Syndrome . Information on Developing SPEECH in those with Down Syndrome: 1... Hearing and speech therapy; 2... James MacDonald, Speech Therapist and his approach; 3... Speech Development In kids with Down Syndrome: Some Age Related Guidelines; 4... Speech therapy and Short Term Memory Problems in those with Down Syndrome. POTTY TRAINING AND POTTY TIMING THOSE WITH DOWN SYNDROME FOR YOUNGER DOWN SYNDROME KIDS Down Syndrome and Potty Training. 1...Can be hard to achieve. 2...Difference between toilet timing and toilet training. 3...Toilet Training Made Simple, and 4...Toilet Timing Made Simple. TOILET TRAINING AND TOILET TIMING THOSE WITH DOWN SYNDROME FOR OLDER DOWN SYNDROME KIDS Information on Down Syndrome and Toilet Training. 1...Can be hard to achieve. 2...Difference between toilet timing and toilet training. 3...Toilet Training Made Simple, and 4...Toilet Timing Made Simple. DOWN SYNDROME AND DOLPHIN THERAPY Information on Dolphin Therapy and Down Syndrome - a three pronged perspective. JACOB AND HIS / OUR EXPERIENCE WITH DOWN SYNDROME:RESPONSES TO BABIES WITH DOWN SYNDROME Information on 1... Siblings: Their thoughts and feelings about Jacob with Down Syndrome. 2... Responses to a Newborn with Down Syndrome by those Outside the Nuclear Family - our experience. DOWN SYNDROME
TEST OF THE THERAPIES
Information on Down Syndrome, Developmental Disability and JACOB's Development - A TEST of the Therapies and Other Things to Consider: A developmental History. Proof of the Therapies for Down Syndrome? 2...To The Future and Beyond. 3...Our Conclusions About many Down Syndrome TREATMENTS, especially in relation to intelligence and mental retardation - How it All Fits Together. JACOB AT NORMAL SCHOOLJacob aged 5 Years and up Information on Down Syndrome, Developmental Disability and JACOB's Development - A TEST of the Therapies and Other Things to Consider: A developmental History. Proof of the Therapies for Down Syndrome? 2...To The Future and Beyond. 3...Our Conclusions About Down Syndrome TREATMENTS, especially in relation to intelligence and mental retardation - How it All Fits Together. OUR DOWN SYNDROME RESEARCH UPDATES:DOWN SYNDROME BRAIN DEVELOPMENT UPDATE Information on small brains aka microencephally and what causes it. What happens to the brains of babies with Down Syndrome, even before the kids are born? or shortly after they are born? Here's the latest answers on Down Syndrome and brain development. MISCELLANEOUS DOWN SYNDROME BITS AND PIECES:Information on the Best Down Syndrome DVDs, Videos, Magazines and Books, with Buy links included if you can't buy locally. ABOUT THE INFORMATION ON OUR SITE Our information is kept updated and as unbiased as is humanly possible. Our guestbook has been deactivated, but you can still read the responses to this website: Many parents with Down Syndrome kids have signed our guest book and left messages of praise and hope. Information on Our LINKS to Other Websites: For Our Suppliers, Dr. Leshin, Support Groups, Information and other links you may like to check out. DOWN SYNDROME FORUM
Our Privacy Policy can be found at www.cholesterolcholestrol.com/privacypolicy.htm Legal Disclaimer for all our Down Syndrome web pages. Always remember to click refresh on each Down Syndrome web page if you come back to visit again, as they are updated - sometimes quite extensively - things change through research and experience. Also, all the Down Syndrome information here is for discussion - you should visit other websites, do your own research, talk with doctors, weigh everything up and make your own decisions on which intervention, if any, that you want to try. More on our legal disclaimer at bottom of this page.
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Copyright © 2000-2005 Donald Urquhart. All Rights Reserved. Designated trademarks and brands are the property of their respective owners. Use of this Web site constitutes acceptance of our legal disclaimer.
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